American Chronic Pain Association (ACPA)
A non-profit organization with an international presence that provides information, education and a support group network to help people with chronic pain
Charcot-Marie-Tooth Association (CMTA)
Founded in 1983, the Charcot-Marie-Tooth Association is a 501(C)(3) nonprofit organization with more than 15,000 patients and families, supportive friends, and medical professionals in its database. The CMTA’s mission is to generate the resources to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie-Tooth. In 2008, the CMTA launched STAR, a Strategy to Accelerate Research focused on finding treatments and, ultimately, a cure for CMT. The CMTA’s vision is a world without CMT!
To find information about our Strategy to Accelerate Research or STAR initiative, click here.
Hereditary Neuropathy Foundation
The Hereditary Neuropathy Foundation is a 501(c)(3) non-profit organization which raises awareness, funds scientific research, and educates the medical community as well as the general public about Charcot-Marie Tooth disease (CMT), offering people with CMT, and their families, medical information and emotional support.
The National Library of Medicine and the National Institutes of Health offer information on more than 600 diseases and conditions. The web site includes a medical dictionary, a medical encyclopedia and information on prescription and nonprescription drugs
National Diabetes Information Clearinghouse (NDIC) – Diabetic Neuropathy
NDIC provides comprehensive information on Diabetic Neuropathy
National Institute of Neurological Disorders and Stroke (NINDS)
NINDS website contains general information on peripheral neuropathy and links to additional resources
National Center for Complementary and Alternative Medicine
NCCAM supports research on complimentary and alternative medicine (CAM). The web site includes information, resources and publications about CAM
Neuropathy Action Foundation (NAF)
The Neuropathy Action Foundation (NAF), a 501(c)(3) non profit, is dedicated to ensuring neuropathy patients obtain the necessary resources, information and tools to access individualized treatment to improve their quality of life. The NAF increases awareness among physicians, appropriate institutions, the general public and public policy officials that neuropathy can potentially be a serious, widespread and disabling condition, which may be treatable when appropriate medical care is provided.
Restless Legs Syndrome Foundation
Information about restless legs syndrome – a common disorder associated with uncomfortable sensations in the legs (often described as crawling, tingling, creeping, pulling or painful) and an overwhelming urge to move the legs that often interferes with sleep
Small Fiber Neuropathy Center
The Small Fiber Neuropathy Center of the Maastricht University Medical Center provides high quality diagnostic facilities for patients with small fiber neuropathy, and is involved in scientific research. The website on small fiber neuropathy provides information that is intended as a resource for patients with small fiber neuropathy (SFN) and their family members, and for healthcare professionals.
GBS/CIDP Foundation International
The GBS/CIDP Foundation International is the only voluntary, nonprofit organization that provides support to patients of GBS/CIDP and their families, awards grants to researchers and offers education to the public and professional communities.
The Pacific Chapter of The Neuropathy Association (PCNA)
The Pacific Chapter Of The Neuropathy Association (PCNA) is a California non-profit, tax-exempt corporation, which promotes the organization of local support groups for people with Peripheral Neuropathy (PN) and those who care for them. Our primary goal is to establish support groups in every population center in Northern California and Nevada.
Neuropathy Support Network
The Network for Neuropathy Support, Inc., dba Neuropathy Support Network is a Florida based 501(c)(3) nonprofit organization dedicated to actively supporting patients, care givers and families affected by ALL forms of Peripheral Neuropathy. The founding director is Eugene B. Richardson BA, MDiv, EdM, MS (Counseling Psychology), LtCol, USA (Retired). The Network supports the implementation of the missions of all organizations reaching out to raise awareness and hope to all neuropathy patients. The Network holds the copyright to the DVD production of “Coping with Chronic Neuropathy” that was developed by professional volunteers, seven with neuropathy, to encourage and empower neuropathy patients world-wide.
The Neuropathy Association
The Neuropathy Association® is a public, charitable, nonprofit organization that was established in 1995 by people with neuropathy and their families or friends to help those who suffer from disorders that affect the peripheral nerves. We are fast approaching a membership of 100,000, and we have more than 250 support groups throughout the United Stated serving patients.
The Foundation for Peripheral Neuropathy
The Foundation for Peripheral Neuropathy is a private foundation committed to fostering collaboration among today’s most gifted neuroscientists and physicians who are dedicated to neuropathy research and treatment to develop new and effective therapies that can reverse, reduce and on day find a cure for Peripheral Neuropathy. It is our ultimate goal to utilize every means and opportunities to dramatically improve the lives of those living with this debilitating disease.
National Institute of Neurological Disorders and Stroke
The mission of NINDS is to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.
The UCSF Neuropathy Center
Coordinates education, support and outreach programs for patients suffering from peripheral neuropathy, a disease caused by damage to the peripheral nerves.
The National Institutes of Health (NIH)
Part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research. Helping to lead the way toward important medical discoveries that improve people’s health and save lives, NIH investigates ways to prevent disease as well as the causes, treatments, and even cures for common and rare diseases.
Provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.
The National Organization for Rare Disorders (NORD)
NORD is a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
American Chronic Pain Association (ACPA)
The ACPA was founded in 1980 to provide resources for people coping with chronic pain.
The National Committee for Quality Assurance (NCQA)
The NCQA provides free access to detailed report cards on health plans, clinical performance, member satisfaction, access to care and overall quality on its Health Plan Report Cards online.
Power of Pain Foundation (POPF)
The Power of Pain Foundation’s mission is to educate and show support for Chronic Pain Patients, specifically those with Neuropathy Pain conditions including diabetic neuropathy, lyme disease, neuro-muscular diseases, neuro-autoimmune diseases, and post cancer pain.
Patient Advocate Foundation (PAF)
The PAF seeks to assure patient access to care, maintenance of employment and financial stability.
Patient Services Incorporated (PSI)
The nonprofit PSI specializes in health insurance premium, pharmacy co-payment and co-payment waiver assistance for people with chronic illnesses.
American Chronic Pain Association (ACPA)
P.O. Box 850
Rocklin, CA 95677-0850
Tel: 888-PN-FACTS (888-763-2287)
National Kidney & Urologic Diseases Information Clearinghouse (NKUDIC)
3 Information Way
Bethesda, MD 20892-3580
Tel: 610-499-9264 800-606-CMTA (2682)
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
Tel: 520-529-2000 800-572-1717
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
Tel: 800-DIABETES (342-2383) 703-549-1500
National Diabetes Information Clearinghouse (NDIC)
1 Information Way
Bethesda, MD 20892-3560
Tel: 301-654-3327 800-860-8747